My Sleep Seizures Make Me Forget My Own Girlfriend | BORN DIFFERENT

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truly
Published at : 10 Nov 2021
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A YOUNG woman has opened up about a little-known condition that sees her suffer with memory-wiping seizures - triggered by everything from extreme emotion to food. Meg, 21, has functional neurological disorder (FND) - where the basic wiring of the nervous system is intact, but the brain is unable to send or receive signals properly. As a result, she experiences debilitating symptoms like seizures, limb weakness, temporary paralysis, tics and narcoleptic-style episodes where she will uncontrollably fall asleep. So little is known about the condition that experts are still unsure what causes it, or exactly how to treat it. Since then, she has been trying to adapt to life, which is difficult, as every day is so unpredictable. Most days, she will have seizures, and also experiences regular sleep attacks. Both can be triggered by heightened emotions. In the past, she’s had a seizure celebrating winning a sweepstake bet, and a sleep attack laughing at an episode of a sitcom. One of the worst parts of Meg’s condition is that the episodes can wipe her memory, so she’ll forget key people in her life - including devoted girlfriend Tara, 23, who keeps a diary and shows her photos or takes her to meaningful places to help her remember. Meg, who documents life with FND on TikTok to raise awareness, concluded: "I want to help give people with hidden disabilities a voice."

Follow Meg:
https://www.tiktok.com/@megjacks
https://www.instagram.com/megjacks_/

Follow Tara:
https://www.tiktok.com/@tarasorkin
https://www.instagram.com/tarasorkin/

Videographer: Nick Hamer
Producers: Erin Cardiff and Kim Nguyen
Editor: Garry Sykes

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